My Mosaic

[Jynx]

@Bow oh hun, I'm sorry the night ended up so poorly. Was just one of those nights like you say 😓

Oh a mystery ouch!! Your poor ankle, hope it's like, just sleeping on a funny angle too long kinda ouch. 

Well mystery bruises is kinda relevant to what I've been processing lol... I think I might have dyspraxia 🙃 

Been thinking about soooo much - like struggling to learn to ride a bike and needing training wheels for ages, always having velcro shoes cos laces were a struggle, always being picked last for sports teams and struggling to ever excel at any kind of sport, could never learn to juggle or cartwheel even tho I tried.... plus always bumping into stuff, knocking over glasses, banging my toes on corners of stuff... and I've been this way my whole life!!

I just never considered before like "Hey maybe all these ways that I have been profoundly struggling to be able to perform movements to a 'normal, age-appropriate standard' are actually NOT a personal failing, and the result of an undiagnosed diability?"

[Bow]

Yeah @Jynx  still really feeling it. I know it’s stupid, it was just a bad day. But it’s really derailed me. Still feels really yucky.

Was reading over that page… remembering things you have shared and your adhd and it was making sense and then read that they often come together. You gonna go see someone about it? 

[Jynx]

Nah nothin stupid about it @Bow I'm the same when it comes to particularly heavy days. I am pretty sure that's normal, like our bodies get FLOODED with soooo many chemicals, so they all gotta be worked through, and all our muscles are coiled like a spring getting ready for anything, so they're chock full of fatigue, and our digestive system gets shut down n has to wake back up again, it's heaps of stuff. It literally puts our bodies through the ringer - so needing a few days to come back down from it is totally normal. Become one with the couch.... Hehehe

Yeah that's it, the co-modbidity, the overlap w ADHD - just so many boxes getting ticked. I think I will have to get a formal diagnosis yeah, cos I wanna apply for NDIS and like, this is a physical disability so it will help me sooooo much with applying. But ohhh boy it is exhausting re-analysing ya whole life! lol. Be nice if this means I can stop shaming myself about my clumsiness tho.

Anything on for you tomorrow? 

[Bow]

Oh that actually makes a whole lot of sense eh @Jynx  I ached so much yesterday, still do. Had to take meds.  Like really tight muscles, stomach pains and I had zero appetite. Now lack of sleep can look like that with my fibromyalgia… but yeah a combination of the two and it all makes sense. 

My SW is suppose to be on tomorrow and she will usually call. I’m really hoping that she has the time to chat for a bit. 

It must be like a sigh of relief to have some answers yeah? My best friends daughter who lives in the UK has recently been diagnosed with adhd and autism. And she said it’s a relief to have answers for so much of her childhood and adult years. And that she can now get some supports for the things that she particularly struggles with. 
Thata good that you can apply for ndis. Is that for both your adhd and now this? What kind of things could you apply for funding with? 

my tomorrow?… no idea yet. We went to the shops this morning. Got my nails done, daughter a new fan (been hot here the last few days yuck) oh and I got the kittens on clearance a sunflower scratching post! It’s so cute. I spent the afternoon on my bed putting together a photo album from our trip. Sleep…. Sleep 💤 is what I need though. 

what’s your Sunday looking like?

[Jynx]

@Bow maybe let her know beforehand that you would appreciate as much time as she can give you? That way even if you 'sound okay' she'll still know that you might like her sticking about a bit longer. 

Oh totally, and yeah happy for your friend who is doing the same!! My psych called it 're-lensing' i.e. looking at your life from a whole new lens. But yeah mainly I wanted support with cleaning and staying organised with the ADHD, maybe some ongoing coaching or something to help with the adulting bizz. Now I'm also thinking I would REALLY benefit from an OT and regular physiotherapy, and massages too if I can get em. Honestly, reading about dyspraxia it sounds like it will make a world of difference. 

Aww a sunflower!! CUUUUTE!! Kitties been keeping you busy I bet?

Honestly tomorrow is just laundry day 🤣 sooooo exciting I know!

[Bow]

Oh yep I could send her a text in the morning so she gets in when she starts work @Jynx 

oh they are great things that you can apply for ndis funding. They would certainly make life a lot easier for you. More organised and tidy! Is it daunting applying for ndis? I guess you’d have to wait until you get a diagnosis though. 

kitties are keeping me a little bit busy. They are needing more and more time out of their playpen and they get up to mischief! But I love the sound of them running from one end of the room to the other. One of them is very close to cracking the 1kilo mark! He has such a round little belly! 

Laundry… it’s gotta be done. Probably need to do a load too. Wash D’s school shirt. I need to go down to the school and grab a couple of new ones.

crunching on a zooper dooper. I like em when oral intake is hard. You like them?

[Jynx]

@Bow yeah I'm pretty nervous about applying, but like yeah diagnosis first and I also wanna see if I can get ASD diagnosis too, so I'm hoping that with the trifecta of ND I won't get knocked back lol. 

omg the PAP PAP PAP of tiny paws is the BEST!

EEEEHEHEHE milk drunk!! 

Ooh yes, cept they always make the corners of my mouth sore!!

[Bow]

Gonna roll over and try and sleep @Jynx  

Hope laundrying isn’t too soul destroying for ya tomorrow! And ya get to do something else fun too.

thanks for chatting tonight, was muchly appreciated distraction 🩵

[Jynx]

My pleasure @Bow was lovely chatting! Rest well lovely 💜