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03 Mar 2025 10:40 AM
03 Mar 2025 10:40 AM
Hey @Oaktree, I'm ok, but it was something that I felt close to as I had a good conversation over posts with Hopenadlove last weekend. Their impact on the Forums was very special, and it was lovely to see them connecting and sharing their experiences with people who genuinely cared for them in their final days.
Thank you for checking in! 💙
RiverSeal
03 Mar 2025 04:55 PM
03 Mar 2025 04:55 PM
hey @Oaktree and everyone else - hope everyone is taking care of themselves 💙
appreciate you checking-in. despite not knowing hopeandlove for long, i really did feel connected with her (and i'm sure a lot of members can relate to that). i'm doing okay. in my mind, she's at peace and with us in a different form - she's in the stars, the flowers, and anything blue. i also put her birthday on my calendar too. hope you're holding up okay?
03 Mar 2025 04:55 PM - edited 03 Mar 2025 05:31 PM
03 Mar 2025 04:55 PM - edited 03 Mar 2025 05:31 PM
Hi @MJG017 - sorry about delayed response.
Not having a MH diagnosis is different from not having a MH issue. It sounds like you recognised that there were issues but maybe you didn’t think to formalise those issues, or weren’t interested in seeing psychologist/psychiatrist. Didn’t have funds, we’re not comfortable opening up etc
I agree learning about attachment styles has been helpful for me too.
Sounds like you are naturally intelligent and that school was not difficult for you. It was the social side that you found difficult. This is also similar to me and hence why I pursued study and work more than social things. I also felt I wasn’t good enough which also drove me towards trying to do something that somehow would make me seem better.
I was the same with avoiding social things and even though I pushed myself to do things I have never partnered or had kids (there are other reasons for that as well). Probably at the base of my MH problems is the reason for my cPTSD.
I also felt my overall life actually got better when I found out I had cancer. I now have more friends and supports because of it - even though I don’t have any deep connections really at least I have people to do things with occasionally or to talk about things. It was very helpful when I got my second diagnosis (which was initially thought to be metastatic, but it turned out I had another chronic disease). I do my sport with cancer survivors and thrivers (those still undergoing treatment for metastatic disease). I have travelled recently to Tasmania and will go to Gold Coast this year with that group to participate against other survivor clubs.
It’s interesting because the cancer diagnosis itself did not affect me, in fact I was sort of happy because I thought I could die in an acceptable fashion rather than by taking my own life. However, that wasn’t to be and the cancer didn’t help there. However, the treatment was what affected my MH because some of it was similar to childhood abuse, like being semi naked for radio, having to lie still while people touched you etc. But for once it was ok to say you had this problem- cancer and everyone was oh you poor thing, can I do anything. Which is totally different that telling anybody you had a MH problem - people tend to drift away, or don’t know what to say, are scared of you in case your unpredictable, feel your going to be a burden or drag them down etc etc
I didn’t think you were rambling- on the contrary I am honoured you have shared your story with me. It’s great to get to know people more deeply.
I have been trying to adjust to retirement (only a couple of months into it) because I have used work to keep me going. I am volunteering and doing a couple of other things. I responded late today because I was off playing table tennis with people I’ve never met. I’m not good at all, but neither are some of the others so it’s good for getting out, exercise, interacting with other people and having an occasional laugh.
I hope you are feeling ok today and the sadness and thoughts about your own destiny do not linger.
03 Mar 2025 04:58 PM
03 Mar 2025 04:58 PM
Thanks @rav3n I am ok. Chatting on the forum to the others that were in that group has been good for me.
I hope you and other mods and others in the group are ok
03 Mar 2025 10:48 PM
03 Mar 2025 10:48 PM
Hi @Till23
No worries about the delay. I only came online later this evening anyway since I had a bit of a 'me' day and just had a quiet one.
I knew there was something different with me from even primary school. I just put it down to being shy. That seemed normal enough. It wasn't until high school and my late teens when everyone started doing other things like dating and going to clubs and things that I started to really wonder why I was seemingly so different. The into my 20s, it became cleared there was an issue and i know the fears and anxieties I had weren't normal but by this stage I didn't have anyone to talk to and there was no internet back then so I just sort of kept to myself and hoped something would change. I'm not really sure how that was supposed to happen, buy there really wasn't a plan-B. So plan-A it was. I didn't even like going to GPs if i was sick or hurt because of the anxiety of having to go and arrange something myself and talking to people I didn't know.
When I had a problem with my eye in 2017 and it didn't go away after a couple of weeks my partner had had enough and dragged me to the AD. We had to go the the Medicare office first (fortunately right across the road) because I didn't have a medicare card. No one could ever explain why I didn't get my own once I turned 18, and I was 46 by this point. I'd just had never been to a doctor to need one. I'm doing my best to make up for lost opportunities now though. So there's so many things that the social anxiety and low self esteem can mess with in your life, things most people wouldn't even think about. This was always clear to me, so it made me even less likely to talk to anyone about it because I thought that no one would ever understand and just tell me to stop being stupid. Everything I had ever experienced taught me that people would just be dismissive about my issues and so I needed to hide them. And so I did.
It's funny how a serious diagnosis like cancer can bring positive changes as well. I remember a few months ago when I commented about how much progress I felt I had made as far as socially and self confidence goes. It's not fantastic now mind you, but compared to where it was, it's a big improvement. Anyway, they asked me how I did it. What was my secret. Without even thinking I just replied "You wont like the answer." They asked again so I told them "Get cancer." I'm not sure whether they thought it was a joke or not. But it was the truth. I don't think I would have made many changes at all if it wasn't for that.
I've heard of people finding radio very triggering but I was never really sure why. But from what you said I can see exactly why it would be. I learnt very quickly that any modesty about being naked in front of people was a thing of the past! By the time it came to having a nurse come over to remove the catheter, it was like someone checking my blood pressure. But for someone who suffered childhood abuse, it is clear how triggering all of it would be. It must have been hard to deal with those triggers at the best of times, but when dealing with the stress of fighting cancer, it must have been incredibly difficult! I'm sorry you had to endure so many things that no one should have to. You get older and look back and wonder to yourself "What chance of a 'normal' life did I ever have?!".
I know all too well about people drifting away when you admit to struggling mentally. Unfortunately the same can happy when you get cancer. In my case my own family. I rarely hear from any of them. And even when I do it's just for something unrelated. So i've lowered my expectations of them considerably and it has made it a bit easier to deal with the frustration and disappointment of have to deal with all of this with no support (or even interest) from them.
The sport with survivors and thrivers (i've never heard that term before) sounds like a lot of fun. And getting to travel with it as well and meet a lot of other people dealing with cancer as well would be very helpful I would imagine.
I do get a lot out of getting to know people on a deeper level now. Which is still very new to me. Maybe that's why I will talk for hours about my own story now. Maybe it's a result of holding it inside for all those decades. Maybe it's a bit of both. But it's very rewarding to actually feel any sort of real connection with someone. Although one part of me kind of wishes I hadn't found people who had been through some of the things I have. Because I wouldn't wish most of this on anyone! And while it has been incredibly helpful to find people who understand, it's still sad that so many people out there have been through it as well... and much, much worse. But i've realised how important it is to support each other because for a lot of us, its all, or mostly, all the real support we have.
I'm adjusting to retirement as well. I tried a lot to get volunteer roles last year but as soon as they hear you're having ongoing and permanent treatment you can see the change. Even at a cancer treatment place... doing a bit of admin and helping people spending hours sitting while they get chemo. So I just try to fill my time with what I can. A lot of which has been supporting others and the awareness opportunities, mostly in trying to get the word out for younger guys to get themselves tested and dispel a lot of myths.
I'm feeling a bit more on top of things today after taking most of it very easy. It sounds like you're out there enjoying life and keeping active, but I too hope that you're doing well with your own MH.
04 Mar 2025 12:25 AM
04 Mar 2025 12:25 AM
It was great you could have a “me day” @MJG017
My way of handling things is to just push through or “one foot in front of the other” type keep going. I am terrible at self-care and in fact only found out it was a thing in last few years!
I was also very shy as a child, before the abuse and then during and after I had to keep the secret so that was kind of like being shy. Really it was the shame.
I am amazed you got so far in life without a Medicare card.
I can understand how you didn’t want to talk to anyone about feeling different to other people. I knew I was different and I knew why, but to tell especially in the 70’s or 80’s would have been much worse because of rampart victim blaming. So I just kept quiet. I’m lucky that the strategy I used to cope was acceptable to society. Many CSA survivors turn to alcohol and drugs and so that unfortunately makes them more ostracised by society. But by working and studying I at least wasn’t completely ostracised even though I felt so ashamed and different from other people.
Many of the survivors in my sport say who would have thought getting cancer would turn out to be a positive thing. It’s interesting how life events can have such a huge influence on your life trajectory.
I have been lucky that I didn’t lose any friends/acquaintances over cancer, although I knew it happens to people. I’m not sure why - whether it makes them worry about their own mortality, they think you will be a burden on them, or even they don’t want to think of you gone. In my family my father was already diagnosed with cancer and my mother had also had cancer twice before I had my first diagnosis so it probably didn’t seem like a huge thing to them. I suppose they thought I’d be alright because at the time both my mother and father were going ok. So I didn’t hear from them much but we are not a close family and we are geographically separated. But they didn’t ignore me.
I think that saying you have to be one to know one holds true for so many things. Even though each person’s journey is different there are similarities that mean people can understand others who’ve been through or are going through the same thing. Especially because people just do not know what happens when you have cancer until they also do or know someone very close to them that does. Like going to radio every day. People don’t think of having to organise yourself to get to the hospital every day for 8 weeks in a row. Plus remember all your other appointments etc. Just the time and effort in keeping track of all that. Especially if you’re doing it all by yourself and trying to juggle work around it. I worked up until the last week of my radio each time. I organised to have the last radio appointment of the day. So I went to work and just left a bit early every day. Of course I had to put it on my timesheet so I was earning less in that time, even though it was costing me for petrol to drive to hospital each day.
I’m really surprised and sorry that even volunteering at places involved with cancer can be so prejudiced. I wonder if they think it will be too much for you, and they think they are being kind.
I volunteer in a kind of drop in centre that provides food for people in need. Some are homeless. Some are just struggling as they are unemployed. Many people have MH issues. I have not told the volunteer place I have MH issues and they haven’t asked. I look ok on the outside so I must be ok. I find it rewarding and you talk to the people who come in and I find it easy to understand them because they’re just me, but haven’t had the same luck that I have. Many people even the other volunteers are afraid of them or feel somewhat derogatory toward them. Some of them are really amazing people but some thing has gone wrong and their whole life has been turned upside down. Many have suffered trauma, actually most of the ones I’ve had longer conversations with, have had some kind of childhood trauma.
Although I agree I’d rather people hadn’t gone through trauma, MH issues or cancer but as they have maybe I can do something that will be of assistance to them.
Your own volunteer role you’ve made for yourself sounds really fulfilling and certainly very worthwhile.
I wouldn’t actually say I’m enjoying life but by forcing myself to do things I am in a much better position than I was, which was pretty awful and I was thinking what’s the point of putting up with something so awful. However I realise a lot of people are in much worse situations than I am and keep on keeping on.
I’m glad you’re feeling much more on top of things today. You really add a lot to the forums I see you commenting on a lot of threads and offering support to people and you do it in a very compassionate way. I would never have guessed you had any type of social problem from reading your comments, they show a true understanding of other people and you express your thoughts so well.
04 Mar 2025 12:44 AM - edited 04 Mar 2025 12:46 AM
04 Mar 2025 12:44 AM - edited 04 Mar 2025 12:46 AM
Also @MJG017 probably we should make a new thread or move to your thread if you have one because @Oaktree invited us here to their own personal thread to help us with HopeandLove’s passing. Now we have very much moved to different topics.
What do you think?
I’m not 100% sure how the forums work - there’s no map that I’m aware of
04 Mar 2025 02:31 AM
04 Mar 2025 02:31 AM
Oh yes, you're totally right! Sorry @Oaktree, we've gotten way off topic. I've created a new thread called "Coping with life's difficulties". It's 2am and it was the best i could think of in this state. I've replied to your post there Till23.
https://lifeline.saneforums.org/t5/Recovery-Club/Coping-with-life-s-difficulties/m-p/1622798/highlig...
04 Mar 2025 03:34 AM
04 Mar 2025 03:34 AM
04 Mar 2025 11:02 AM
04 Mar 2025 11:02 AM
Thank you for providing this space on your thread @Oaktree
I hope you are going ok
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